During the night, Will pulled out 2 of his IV's and came close to pulling the drain tube out of his head. They took mercy on him and pulled out his catheter before he pulled it out for them. He is not sedated, but is being given a steady stream of Morphine every 4 hours. After about 3 1/2 hours it becomes apparent that the Morphine is wearing off and that last half hour seems like an eternity. They came to the room late this morning and removed his drain tube from his head, and it took 4 of us to hold him in place for the tube to be pulled out and 2 stitches put in place. Needless to say, he is getting a reputation in the ICU as a tough little fighter.
Will is sleeping for the most part, and has spent a lot of time on Kelly's lap all snuggled up and doing his fair share of crying. We can only imagine what kind of a headache he must have, and the confusion that is going on in his little head right now. He is still gaining his color back, and is looking better all the time. The swelling is not too bad yet, but we have been cautioned that after up to 48 hours of surgery he might look like a boxer after a fight.
We are going to be following him to a post-op MRI shortly, and after that we will be moved back to the Pediatric Epilepsy Monitoring Unit, which is where we have spent all of our other stays while at the Clinic. We are looking forward to seeing all of our old friends in that unit!
Lots of doctors, nurses, and specialists have been rolling in and out of here day and night. Lots of questions and lots of readings, blood samples, etc.. to make sure he is OK. Despite all the difficulties with him right now, it is a great thing that he is so full of fight, and is resisting us every step of the way. We might be pretty scared if he just laid there and let them stick him with needles, etc...
So far, so good!