Wednesday, November 9, 2011

It's Good to be Home

This would have been posted a lot sooner today, but Will has suddenly found a real interest in the laptop, and every time it was out he had to sit on our lap and peck away at the keyboard - a great sign!

We got home yesterday afternoon, and Will slowly let his guard down and is now happy to be home.  We picked up some burgers and fries on the way home, and when we sat Will in his chair and put some fries in front of him, he actually fed himself!  This was the first time since surgery that he wasn't clamoring for one of us to hold him, and he suddenly had one heck of an appetite.

His stitches are holding nicely, he is handling the pain pretty well, and he is only on ibuprofen and tylenol for painkillers now.  And best of all, still no seizures!

It was great to see the view from our living room window last night rather than the view from the hospital window, and it was a beautiful evening as well!

After we got home, he was pretty clingy to the two of us.  Sleeping is still an extreme challenge.  He basically demanded that one of us hold him while the other be next to him, otherwise he would cry.  Also he is quite startled by loud noises, even loud multiple conversations have made him pretty upset.  We hope it is because he has clarity in his head like he's never had before, and things like this bother him now that the irregular brain activity has been removed.

During the course of the day today he really seems to have let his guard down, and it appears that he has begun his progress.  He seems very aware of his surroundings, and he is playing with his toys on the floor without either of us nearby.  He is engaging his toys as much as before (if not even more so), and seems to be really enjoying himself.  He waved several times today, not a great wave but very deliberate, which we haven't seen in a long time.  He still has moments where he suddenly looks around and realizes that we are farther away than he would like, and moves quickly to get to us.

Now is where the real test begins.  We need to start watching his development and helping him as much as possible, wherever possible.  We will now find out whether his delays are solely because of the bad brain causing seizures that was removed, or if there are other issues in his brain that are causing this as well, and there may be nothing that we can do about them (scary thought).  It would be so great if he could start talking.  We have to approach this as if the seizures are coming back, so we can't waste any time in trying to get his mental development moving.  Who knows- the seizures might come back tomorrow, and freeze his development again.  As soon as we can push him to learn things we need to do so.

It's good to be home!


  1. It's great to see three smiling guys!

  2. No place like home. Glad to see him doing so well. Love the Siglers

  3. That's so good to hear!

  4. Kelly-

    We were given your blog address by Tom at Cleveland Clinic. We just got admitted Monday with our 2 and 1/2 year old son, Eli. He was just diagnosed with partial seizures in January. We are on for patient management for this Tuesday. I would love to talk to you about your experience here. My cell is 317-828-0363. We also have a care page set up:

    I haven't had a chance to read your entire blog yet but will as soon as we have some down time. We started reading it while in the PACU after the MRI today but were getting teary eyed so had to stop. We also have a almost 5 year old at home and also have boy #3 on the way at the end of January.

    Take Care,
    Deborah Wilson

  5. Our thoughts continue to be with you all during Will's road to recovery. We were so happy to hear of the successful surgery and continue our prayers for an even better recovery! :)
    Katie & Nick Babic

  6. So glad to see Will doing so well, thought of him often over the last few days, he's such a little fighter. Miss seeing you guys, but so glad you are home!