We got home yesterday afternoon, and Will slowly let his guard down and is now happy to be home. We picked up some burgers and fries on the way home, and when we sat Will in his chair and put some fries in front of him, he actually fed himself! This was the first time since surgery that he wasn't clamoring for one of us to hold him, and he suddenly had one heck of an appetite.
His stitches are holding nicely, he is handling the pain pretty well, and he is only on ibuprofen and tylenol for painkillers now. And best of all, still no seizures!
After we got home, he was pretty clingy to the two of us. Sleeping is still an extreme challenge. He basically demanded that one of us hold him while the other be next to him, otherwise he would cry. Also he is quite startled by loud noises, even loud multiple conversations have made him pretty upset. We hope it is because he has clarity in his head like he's never had before, and things like this bother him now that the irregular brain activity has been removed.
During the course of the day today he really seems to have let his guard down, and it appears that he has begun his progress. He seems very aware of his surroundings, and he is playing with his toys on the floor without either of us nearby. He is engaging his toys as much as before (if not even more so), and seems to be really enjoying himself. He waved several times today, not a great wave but very deliberate, which we haven't seen in a long time. He still has moments where he suddenly looks around and realizes that we are farther away than he would like, and moves quickly to get to us.
Now is where the real test begins. We need to start watching his development and helping him as much as possible, wherever possible. We will now find out whether his delays are solely because of the bad brain causing seizures that was removed, or if there are other issues in his brain that are causing this as well, and there may be nothing that we can do about them (scary thought). It would be so great if he could start talking. We have to approach this as if the seizures are coming back, so we can't waste any time in trying to get his mental development moving. Who knows- the seizures might come back tomorrow, and freeze his development again. As soon as we can push him to learn things we need to do so.
It's good to be home!