Thursday, November 22, 2012

Giving Thanks

This year, as we prepare to gather around the Thanksgiving table and attempt to count our many blessings, we cannot help but smile.  We have so very much to be thankful for.  So often, its seems that the things that deserve the most gratitude are the things that we often take for granted.  It is with grateful hearts that we are watching our son learn things that most take for granted - normal everyday things - but things that we once thought he might never be able to do.

Earlier this month, Will started pre-school.  In many ways, this was a dream come true for us.  We have prayed so hard that someday he would be able to do this.  He is attending an inclusion program, which means that his class is a mix of typical children and children with special needs.  So, with lumps in our throats and slight smiles on our faces, we walked across the parking lot to take Will to his first day of preschool.  This is the first time our little man has taken a step out into the world without us.  And we were all too aware at that moment that he is not just a normal kid going to preschool.  Our older son Jack walked into preschool the first day and literally never looked back.  Will didn't exactly do that, but he did pretty good.  He's a tough little guy who can withstand more than most people (and already has), and he went into that classroom with the same fight that makes him our little Buster Beans.

He has never experienced any form of classroom structure before and cognitively doesn't understand a lot of what goes on at school.  He is having a hard time following routines, and transitioning from one activity to another, especially when he was having a lot of fun with the first activity.  He has his crying moments, as expected.  Even though he is doing amazingly well, his cognitive age still lags far behind his chronological age, so there are of course things that he doesn't want to do, doesn't understand, or simply isn't ready for.  But he is adjusting, and quickly.  His teachers are excited to tell us all about the progress he makes each day when we pick him up.  Their enthusiasm is inspiring to us to keep pushing him to do more and to do better.

As Will adjusts to his new life in school, we are absolutely floored at the progress he is making.  His verbal abilities as well as his cognitive abilities are in high gear.  He now has more words than we can count, and he gains new ones every day.  Not only can he repeat words that we say almost whenever he wants to, he is learning to use words to communicate with us, and he is learning to understand things we say to him.  He is learning his colors, numbers, and animal sounds.  It is nothing short of a miracle to behold.  Last week, Dan told Will it was time to brush his teeth, and he immediately ran up the stairs to the bathroom and patiently waited for us to come up and help him.  When we tell Will it is time for dinner, he is the first one sitting at the table, waiting to be served.  When we tell him it is time to go outside, he goes and gets his shoes out and waits for help to put them on.  It is absolutely amazing to see.

November is Epilepsy Awareness month.  Astonishingly, Epilepsy takes the lives of more Americans each year than breast cancer - almost 50,000.  Over 3 million Americans suffer from Epilepsy, more than Multiple Sclerosis, Parkinson's, Cerebral Palsy, and Muscular Dystrophy combined.  Of children with Infantile Spasms, 95% will have severe mental retardation later in life, and as many as 15%  - more than 1 in 8 - will die before they reach age 25.  So yes...we have many things to be thankful for.  However, awareness and funding for the devastating effects of Epilepsy is ridiculously low.  Words cannot express how grateful we are for everyone that follows our blog.  We hope that Will's story can help to educate others and spread awareness about Epilepsy.


  1. So heartfelt. I've been coming to this site every once in awhile to see how he is doing. I continually pray that your family will be back to normal and the fear you hold in your heart and the back of your mind will someday be gone. I pray Will will continue to gain and do amazing things in his life, as he has done already. I also pray for Jack, who seems to be the perfect brother for his small age. I had no idea Will started school. A true Miracle in itself. God Bless your family this Thanksgiving and may you continue to have the many more blessings. You are remarkable parents.

  2. Dan and Kelly,

    Mark sent me a link to this blog about a year ago. From time to time, I check in to see the progress but had not done so for quite some time. But I'm thrilled to see the results of the latest surgery, and the continued prgress since that time. Happy Holidays to you and the entire Slattery and McClelland families. Wishing you nothing but the best of health in 2013 and beyond.

    Bill Everett