|Jack and his cousin made a special poster for Will|
It was such a surreal feeling for us to hear this news. We sat there and listened to Dr. C tell us what he saw on the EEG, answered his questions about how Will is doing, discussed our questions and concerns, and all along it felt like we were in a dream. For almost 2 years we have lived and breathed a war - Will's war - on Infantile Spasms. We've tried or considered every treatment available. All of the appointments with countless doctors, blood draws, MRI's, PET scans, EEG's, Neuro-Psych evaluations, therapy sessions, the many awful drugs, months on the Ketogenic diet, the first surgery, and now the second surgery. After living through all of these things, to FINALLY hear a doctor say "it looks good" was something that we hoped to hear, but when he actually said it, it took a while for his words to sink in.
We discussed Will's current abilities, and how they differ from his abilities before the surgery 6 weeks ago. At that time, he was able to say only 5 words, and even then he would really only say them when prompted. Now, he is able to say over 100 words - 6 weeks later! He is even starting to string 2 words together. He is learning his animal sounds. He knows his numbers 1-10. Will's cognitive abilities and his language abilities have exploded, much to our delight. We knew something good is going on in our little Buster Bean's brain, regardless of what the EEG showed. Now, although there are never guarantees, we have good reason to believe that this will remain, and that Will is likely to continue to progress developmentally and do well into the future. Hooray for Will!