Will was admitted to the Clinic earlier today (Monday, 6/13) to start the Ketogenic Diet. We will likely be here through Thursday. While we are here, he is also scheduled to have a 3 Tesla MRI and FLAIR study. A normal MRI is only 1.5 Tesla, which means that this will basically be like an MRI in hi-def. We are hoping that the 3T MRI will show Will's brain in much greater detail and give the doctors some valuable data. The FLAIR study was requested by Will's neurosurgeon, as it can sometimes help to identify which areas of the brain need to be removed.
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| Will's first Ketogenic meal |
Will got his first "meal" on the diet tonight. We were blown away by the small amount of food they gave him! He basically got a few tiny shot glasses of food, which included straight butter and heavy cream. When they brought the little portion cups in, we halfway thought they were bringing us Jello Shots, but we were sadly mistaken. Regardless, when they checked Will's blood levels tonight he was already into "moderate" ketosis, which is a good thing. We will need to get to "high" levels over the next few days.
We are really praying hard and crossing our fingers that this diet will work, and we hope that everyone reading will do the same. It would be so amazing if we would be able to treat him without drugs or surgery!
Um, that's the quantity I eat multiple times a day as a not-even-hungry mindless-eating snack! Glad Will's stomach is smaller than mine (and there's lots of love and incentive to keep him from straying). I continue to send prayers your way. Xoxo
ReplyDeleteKelly,
ReplyDeleteYou and your family are in my thoughts and prayers. It makes me recall when my son Brad was very young. I remember feeling that the world was still going forward, but mine was sort of standing still. I pray they find a cure for Will, and just wanted to let you know how much we are thinking about you and your family. Sending love and positive energy, also congratulations on making partner at your firm. Sincerely Karen Herwig