Saturday, April 9, 2011
At the Crossroad
Will is still having what we believe is a modified type of seizure, but since the EEG on Thursday was only for 75 minutes, they weren't able to detect any of these episodes during the test. So, Will is going to be readmitted to the hospital on Monday for what will likely be two nights, where he will be connected to the 24/7 video EEG so that they can continue to monitor him and hopefully provide us with more answers as to what is going on. As much as we hate being inpatient at the hospital, we are actually glad that they are going to be gathering more data. Plus, we have been there almost every day this week anyway, may as well have a room to call our own.
We are nervous to even type this for fear it won't stick, but Will has not had a "head drop" flexor spasm in 6 days. He is still not "seizure free", but we will take any blessings we can get. We are basically standing at a crossroad right now. There is a chance that the seizure activity and abnormalities in his brain waves we are still seeing right now will continue to improve from the ACTH. However, this is also a chance it won't especially because we had to reduce the dose because of his blood pressure.