|Will eating his dinner|
We have met with numerous doctors, nurses, and nurse practitioners who have all reviewed Will's chart, and it is very apparent that we are in the right place, where they have a great deal of experience in treating children with IS. We have been told repeatedly that because Will's spasms are caused by an identified area of the brain, the likelihood that we will be able to stop his seizures with surgery is very promising, which is typically not an option for children, unlike Will, that have more generalized seizures. That, coupled with the late the age of onset of Will's seizures and his relatively normal development thus far, we are trying to remain hopeful for the future. One nurse practitioner told us "As devastating as his diagnosis is, you have a lot to be positive about."
Jack spent the weekend visiting his cousins a few weeks ago, and when he got back, I asked him if he missed me. He said "I tried really hard to miss you mommy, but it just didn't work." When we left today, he told me "This time, I am going to miss you mommy." We are going to miss him too. Luckily, he has lots of grandparents, aunts and uncles who are going to spoil him over the next few days!
I now have the blog set up for email subscriptions, so if you want to receive emails of updates, you just need to put your address into the "Subscribe by Email" box at the right of the blog. You will receive an email that you need to click on to confirm your subscription, and that should be it. Bear with me, I am very new to the world of "blogging" and not quite sure how all of this works!
It sounds like we have a very long day ahead of us tomorrow, please keep little Will in your prayers.